Goal: The precise goal of the project is the provision of Arsenic free ‘safe’ drinking water to the villagers and purposeful mitigation of Arsenicosis through community action and creating mass awareness.
Purpose: The major purpose of the project is to improve drinking water quality by motivating the rural community to prevent and reduce arsenic contamination in ground water as well as relief from skin disease to the affected victims.
Objectives: Establish community groups to take action on arsenicosis as a sustainable community institution, Improve drinking water quality in arsenic affected areas through ground and surface water treatment and rain water harvesting.Increase prevention of arsenicosis through improved community awareness, diagnosis and treatment.To carry out research & development with new technologies towards mitigation of Arsenic pollution and genetic study of the already affected arsenicosis patients to prevent / reduce further complcations of arsenicosis,
Project beneficiaries.Target groups here represent the population which is already or at risk of arsenic contamination. They are the people in arsenic affected villages under seven districts of Paschimbanga (North 24Prgs., South 24Prgs., Malda, Murshidabad, Nadia, Burdwan & Hooghly).
Summary of Activities / Brief implementation plan / Duration- Overall sustained environmental development and better quality of life assured in the arsenic affected areas by socio-economic upliftment of the people (savings from expenses on health diverted to productive activities).
How was the project recipients involved in the planning of the project?- Overall project strategy is community empowerment at the village level to solve the growing problem of arsenic contamination in West Bengal using low cost, low maintenance and sustainable solution.
The need: Among the 17 Neglected Tropical Diseases prioritized by the World Health Organization, there are 7 that have prominent skin manifestations, the Skin-related Neglected Tropical Diseases : leprosy, yaws, lymphatic filariasis, mycetoma, cutaneous leishmaniasis, , Buruli ulcer and onchocerciasis. The first five skin-related NTDs exist in the Philippines. In areas of armed conflict and geographically inaccessible communities, there are likely to be more cases of skin-related NTDs. Innovative and integrated approaches to NTD control and eradication are therefore needed.
The proposed intervention: Partners in Leprosy Action (PILA) is a strategy initiated by the Philippine Leprosy Mission in 2005 that brings together various stakeholders (Local government units, Department of Health, Department of Education, dermatologists, community members) to develop sustainable community skin health programs to enhance awareness, early detection, treatment, and prevention of leprosy and other prevalent skin diseases. In 2015, PILA was selected as one of the top 23 best practices by the Social Innovation in Health Initiative (SIHI) of the TDR-WHO, University of Oxford, and University of Cape Town.
The Goal: This project aims to determine the effectiveness, outcome, and impact of the Partners In Leprosy Action (PILA) strategy as a combined approach to skin–related NTDs in the province of Maguindanao, a Geographically Isolated and Disadvantaged Area (GIDA) of the Philippines where at least two of these NTDs have been reported as endemic (ex. leprosy and yaws). This study will explore the potential of such a combined approach to be scaled up to other parts of the country.
Epidermolysis bullosa (EB) is a rare genetic disorder characterized by spontaneous or trauma induced blisters throughout life. Some forms of EB are fatal while others have chronic wounds with other problems including feeding difficulty, poor weight gain, nutritional deficiency, eye involvement, deformities and increased risk of skin cancers. In India, the exact prevalence is not known. However, due to increased consanguineous marriages, it is expected that the more severe recessive forms are more common. Care of EB patients has been largely neglected due to lack of awareness. Most patients are seen as a part of the regular dermatology outpatient. There are no specialized clinics in most parts of the country. Parents of children with EB are advised that the condition has no cure and hence wouldn’t need to visit a doctor anymore. Moreover, India is a big in land area and population that makes it difficult to reach out.
In this project, we propose to create a “hub and spokes” model of care for EB patients using technology. We intend to partner with pediatricians and dermatologists, reach out to EB patients living in small towns and villages of the state using teledermatology, who would otherwise find it difficult to access appropriate health care facilities. The focus would be on early diagnosis, patient care and education and simultaneously building awareness amongst health care professionals.
Autoimmune Blistering Disease (AIBD) and Epidermolysis Bullosa (EB) are debilitating diseases that severely impact upon patients’ quality of life. Given that there are limited treatment options, improving the patients’ quality of life is very important. In many Asian nations patients do not have access to government-funded vital services such as counselling, home-care nursing and dressings, etc. The aim of this project is to provide dermatologists in Asian countries with the tools to gather data on the quality of life of their patients and then use this data to convince the appropriate decision-makers that these access schemes are necessary.
In developing countries, especially in the government sector, where a large number of patients are seen in limited time, details regarding disease, correct way to carry out therapy, precautions to take, etc may not be disseminated properly resulting in improper compliance and suboptimal therapeutic response. This could be interpreted as therapeutic failure leading to frequent changing to costly medications rather than addressing the primary problem. This innovative attempt where a dermatology knowledge park is proposed to be developed in an outpatient area housing information about the “Do’s & Don’ts” of skin care in health and disease will hopefully benefit the community.
Dermatology is poorly taught to Australian undergraduate medical students despite the fact it represents 20% of presentations to GPs. Australian medical students receive an average of 3 lectures during their undergraduate course. This has meant that junior doctors approach skin conditions with a lack of confidence and familiarity, which in turn leads to delayed diagnosis, mismanagement and poor patient outcomes. The aim of the project is to utilise innovative technology to create a mobile application that facilitates dermatology education. The visual nature of dermatology coupled with the convenience of mobile learning will lead to increased understanding and improved patient management.
The Australian Skin Cancer Academy (ASCA) was established in 2016 by a group of Specialist Dermatologists, Plastic Surgeons and a Skin Cancer General Practitioner. The aim of the group is to deliver specialist-led training to practitioners in the field of skin cancer In 2016/2017 ASCA has partnered with the Australian College of Dermatologists, Healthworkforce Qld and Sullivan and Nicollades to deliver teaching programs. ASCA is proposing to deliver Web based interactive CPD accredited Clinicopathology meetings to skin cancer professionals in rural areas. These interactive sessions will be facilitated by a Dermatologist with Plastic surgeon and Dermatopathologist input.
It is a sad thing to see a child with irreversible nerve impairment due to leprosy. We must do our best we can to prevent leprosy and to prevent disability in leprosy-affected children. Nevertheless, the disability children with leprosy in Indonesia often live in the remote area. So, Bandung Branch PERDOSKI (Bdg-BP) as an association of dermatologists arranges a project to do the rehabilitation education program for healthcare communities through long distance via electronic devices, as called tele-medicine, especially tele-rehabilitation, that mediated using video streaming, social media, and website.
Cutaneous adverse drug reactions (cADRs) are conditions of high morbidity and mortality. Studies on health practitioners’ recognition of these syndromes, management and risk communication have been minimal. In addition, documentation of severe allergic drug reactions has been suboptimal, likely stemming from lack knowledge and awareness. This confers risks to patients and their understanding of medications to avoid in the future to prevent the allergy from recurring. Our study aims to firstly define the gaps in health practitioners’ knowledge around cADRs so that we can develop a targeted education program to enhance accurate assessment, reporting, risk communication and patient safety.
Schistosomiasis control has been unsuccessful in Eastern Samar, Philippines where this neglected tropical disease continues to be endemic. Ongoing government programs are treatment-aimed, lacking towards prevention and total eradication.
This project will teach the whole community: healthcare professionals, teachers, parents, and school children of the early recognition of Schistosomiasis leading to early management. The aim of the project is avoidance of chronic morbidity and late-stage sequelae of Schistosomiasis prevalent in three rural towns of the province. A film and a comic book because of their mass appeal shall be used in workshops to educate the community.